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Ruben Verborgh

Personalized Medicine Through Personal Data Pods

Elias Crum, Ruben Taelman, Bart Buelens, Gökhan Ertaylan, and Ruben Verborgh

Medical care is in the process of becoming increasingly personalized through the use of patient genetic information. Concurrently, privacy concerns regarding collection and storage of sensitive personal genome sequence data have necessitated public debate and legal regulation. Here we identify two fundamental challenges associated with privacy and shareability of genomic data storage and propose the use of Solid pods to address these challenges. We establish that personal data pods using Solid specifications can enable decentralized storage, increased patient control over their data, and support of Linked Data formats, which when combined, could offer solutions to challenges currently restricting personalized medicine in practice.

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Published in 2024 in Proceedings of the 15th International Conference on Semantic Web Applications and Tools for Life Sciences.

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Cite this article easily using its BibTeX entry: 

@inproceedings{crum_swat4hcls_2024,
  author = {Crum, Elias and Taelman, Ruben and Buelens, Bart and Ertaylan, G\"okhan and Verborgh, Ruben},
  title = {Personalized Medicine Through Personal Data Pods},
  booktitle = {Proceedings of the 15th International Conference on Semantic Web Applications and Tools for Life Sciences},
  year = 2024,
  month = feb,
  url = {https://drive.google.com/file/d/1K7_bawDLJQirY2niDKFXVSD4-IDt9R3I/view},
}

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ACM
Elias Crum, Ruben Taelman, Bart Buelens, Gökhan Ertaylan, and Ruben Verborgh. 2024. Personalized Medicine Through Personal Data Pods. In Proceedings of the 15th International Conference on Semantic Web Applications and Tools for Life Sciences.
APA
Crum, E., Taelman, R., Buelens, B., Ertaylan, G., & Verborgh, R. (2024, February). Personalized Medicine Through Personal Data Pods. Proceedings of the 15th International Conference on Semantic Web Applications and Tools for Life Sciences.
IEEE
E. Crum, R. Taelman, B. Buelens, G. Ertaylan, and R. Verborgh, “Personalized Medicine Through Personal Data Pods,” in Proceedings of the 15th International Conference on Semantic Web Applications and Tools for Life Sciences, 2024.
LNCS
Crum, E., Taelman, R., Buelens, B., Ertaylan, G., Verborgh, R.: Personalized Medicine Through Personal Data Pods. In: Proceedings of the 15th International Conference on Semantic Web Applications and Tools for Life Sciences (2024).
MLA
Crum, Elias, et al. “Personalized Medicine Through Personal Data Pods.” Proceedings of the 15th International Conference on Semantic Web Applications and Tools for Life Sciences, 2024.

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